A digital solution to support you on your journey with Long Covid, Fibromyalgia, ME/CFS, and more.

When managing your condition alone becomes difficult , Open-OH offers support to 

Understand your condition

Track daily symptoms, assess functional ability, and utilise clinically validated assessments to share with others  

Access resources

Access free support resources from trusted sources to learn management strategies routinely deployed in clinical services and other support available in your region. 

Join a community

Choose which data to share anonymously, contribute to research studies where available, and keep up to date with new findings 

Find Support

Find nearby clinical services and support groups in your area or online.  

Manage symptoms

Use validated tools to assess symptoms and change over time

Access resources

Choose from a range of resources to help you on your journey, tailored for you

Participate in research

Participate in global research and keep updates on news

Find Support

Find verified services for support with symptoms , healthy living and returning to work

Bringing together leading clinical researchers, digital health experts
and the lived experience of patients

Open-OH builds on ELAROS and University of Leeds’ award-winning partnership that has supported over

60 NHS organisations and 25,000+ patients with the C19-YRS platform

How to use

For self-management

  • Use validated tools to assess and monitor your symptoms over time 
  • Access educational resources tailored for your condition 
  • Learn strategies to self-manage symptoms 
  • Share reports with carers and relatives 
  • Access support for managing or returning to work

Together with a clinical team

  • Share clinical reports with clinicians
  • Complete tasks set by clinicians
  • Control what data is shared 
  • Find nearby services and support groups

For Research

  • Find national and international research studies
  • Share your data securely
  • Opt in and out at any time
  • View national trends and research updates
  • Engage with a community of people with Long Covid 

Frequently asked questions

Living with a long-term condition that limits your energy such as Long Covid, ME/CFS, Fibromyalgia, or PoTS can feel overwhelming, isolating, and unpredictable. Everyday tasks, work responsibilities, and even moments of rest can become difficult to manage. That’s why we created Open-OH: a mobile app designed to support you in navigating these challenges with confidence, clarity, and compassion.

Open-OH is more than just a symptom tracker, it’s a personalized toolkit for improving your quality of life, one small step at a time. Whether you’re at home, at work, or somewhere in between, Open-OH helps you understand your patterns, manage your symptoms, and gradually build a lifestyle that works with your condition not against it.

Living with an energy-limiting condition can feel overwhelming, but Open-OH changes the game by combining personalized symptom tracking, smart pattern detection, and step-by-step action plans into one intuitive app plus guided mental health exercises, workplace and community support resources, and motivational progress insights.

Co-designed with people living with Long Covid, ME/CFS, Fibromyalgia, and PoTS, and backed by NHS research, DHSC, and DWP, Open-OH transforms your health data into real, daily wins so you can reclaim your energy, confidence, and quality of life. Download Open-OH today and start your free trial.

Open-OH brings together a range of useful features and resources to help people with their health, wellbeing, and functional capacity throughout their journey with their condition.

Open-OH can help deliver personalised support to meet individual user needs, whether that is for their physical symptoms, mental health, or support in the workplace or community.

Open-OH can be used alone at home to help you to self-manage your condition using validated assessment and monitoring tools, and to access support resources for various aspects of your condition.

You may wish to share progress with relatives, colleagues, or healthcare professionals who can support you on your journey. Open-OH can generate powerful yet simple summary reports to help understand your challenges and progress over time.

These clinical reports can easily be interpreted by healthcare staff and uploaded to your local healthcare records for staff to review in the future.

If you are looking for clinical support, Open-OH will list clinical services available in your area. Alternatively, we may signpost you to community support groups in-person or online if public health services (e.g. NHS) are not available in your country.

Open-OH is currently in the Minimal Viable Product (MVP) stage of development, which will be tested and iterated by the team of advisors and experts. 

The feedback from the MVP stage will be used to build the beta version of the app, which will be available to our early adopters group who will be instrumental to further development. 

After multiple stages of development, the app will be available to the end user on the Google or Apple app store.

The early adopter’s group is made up of individuals with Long COVID, ME/CFS,  Fibromyalgia and other long-term conditions who have helped to develop Open-OH by offering their valuable insights and feedback.

The aim of the group is to gather as much feedback as possible to make the app accessible for people with different long-term conditions, and to ensure it meets individual user needs through its various features.

Participation in the group looks different depending on each individual’s functional capability and can change depending on how their condition is affecting them at any given time. This means there is flexibility in how the contribution can be provided to suit all capabilities, with activities ranging from quick polls or email-based feedback/commentary to more in depth 1-2-1 feedback meetings, group workshops or questionnaires based around the app design and new features.

By involving individuals with long-term conditions, we can ensure the future developments of the app are tailored to include as many helpful features as possible based on the direct feedback we receive from our valuable early-adopters group.

Open-OH is not yet available to the public.

The public release is planned for the beginning of the year 2025, and anyone who would like to be the first to try it out can use the link below to sign up for the Beta release. 

This way you will be notified when the app is available on the Google or Apple App Store.

To trial the app or find out more: