A digital solution to support you on your journey with Long Covid, Fibromyalgia, ME/CFS, and PoTS.
When managing your condition becomes difficult, Open-OH can support you on your rehabilitation journey
Monitor your daily symptoms, assess functional ability, identify triggers and how to avoid crashing.
Access validated support resources and clinical interventions to learn how to self-manage and alleviate symptoms to improve your quality of life at home and at work.
Choose which data to share anonymously,
contribute to global research studies, and keep up to date with new findings.
Find nearby clinical services and support
groups in your area or online.
Use validated tools to assess symptoms and change over time
Choose from a range of resources to help you on your journey, tailored for you
Find verified services for support with symptoms, healthy living and returning to work
Participate in global research and keep updates on news
Open-OH builds on ELAROS and University of Leeds’ award-winning partnership that has supported over
60 NHS organisations and 25,000+ patients with the C19-YRS platform
Open-OH is a mobile app designed to support people with energy-limiting long-term conditions to manage their symptoms and gradually improve their day-to-day living, at home and in the workplace.
Open-OH is for anyone with a confirmed or suspected Long Covid / Post-Covid-19 Syndrome and other conditions like Myalgic Encephalomyelitis/Chronic Fatigue (ME/CFS), Fibromyalgia and other chronic symptoms that overlap with these conditions.
Many of the resources found in the app could support people with a range of health conditions or challenges in work which you may find useful.
As the app develops further we aim to list more conditions and specific chronic symptoms that the app can support.
Open-OH brings together a range of useful features and resources to help people with their health, wellbeing, and functional capacity throughout their journey with their condition.
Open-OH can help deliver personalised support to meet individual user needs, whether that is for their physical symptoms, mental health, or support in the workplace or community.
Open-OH can be used alone at home to help you to self-manage your condition using validated assessment and monitoring tools, and to access support resources for various aspects of your condition.
You may wish to share progress with relatives, colleagues, or healthcare professionals who can support you on your journey. Open-OH can generate powerful yet simple summary reports to help understand your challenges and progress over time.
These clinical reports can easily be interpreted by healthcare staff and uploaded to your local healthcare records for staff to review in the future.
If you are looking for clinical support, Open-OH will list clinical services available in your area. Alternatively, we may signpost you to community support groups in-person or online if public health services (e.g. NHS) are not available in your country.
Open-OH is currently in the Minimal Viable Product (MVP) stage of development, which will be tested and iterated by the team of advisors and experts.
The feedback from the MVP stage will be used to build the beta version of the app, which will be available to our early adopters group who will be instrumental to further development.
After multiple stages of development, the app will be available to the end user on the Google or Apple app store.
The early adopter’s group is made up of individuals with Long COVID, ME/CFS, Fibromyalgia and other long-term conditions who have helped to develop Open-OH by offering their valuable insights and feedback.
The aim of the group is to gather as much feedback as possible to make the app accessible for people with different long-term conditions, and to ensure it meets individual user needs through its various features.
Participation in the group looks different depending on each individual’s functional capability and can change depending on how their condition is affecting them at any given time. This means there is flexibility in how the contribution can be provided to suit all capabilities, with activities ranging from quick polls or email-based feedback/commentary to more in depth 1-2-1 feedback meetings, group workshops or questionnaires based around the app design and new features.
By involving individuals with long-term conditions, we can ensure the future developments of the app are tailored to include as many helpful features as possible based on the direct feedback we receive from our valuable early-adopters group.
Open-OH is not yet available to the public.
The public release is planned for the beginning of the year 2025, and anyone who would like to be the first to try it out can use the link below to sign up for the Beta release.
This way you will be notified when the app is available on the Google or Apple App Store.